Contribution For Each Purchase
For each purchase from HeartThreads Clothing money is contributed to the National Psoriasis Foundation. For each T-Shirt $8.00 goes directly to the fund and for each scarf and phone case $4.00 goes to support the activities of NPF.
National Psoriasis Foundation Overview
National Psoriasis Foundation is the world’s largest advocacy organization for people with psoriasis and psoriatic arthritis. Serving more than 2 million people annually through education, outreach, advocacy and research programs.
Psoriasis is a chronic, autoimmune disease that appears on the skin. It occurs when the immune system sends out faulty signals that speed up the growth cycle of skin cells. (Psoriasis is not contagious).
To find a cure for psoriasis and psoriatic arthritis and to eliminate their devastating effects through research, advocacy and education.
FINDING A CURE
There may not be a cure for psoriasis, but psoriasis medications can be effective in helping to manage it.
Psoriasis medications aim to reduce psoriasis symptoms such as removing scales and smoothing the skin, or to slow the overproduction of skin cells.
Not all psoriasis medications are effective for everyone; what works well for one person may be ineffective for someone else.
- TOPICALS Are applied to the skin lesions and work directly on the skin’s surface. They are usually the first treatment used for psoriasis.
- PHOTOTHERAPY Also known as light therapy, phototherapy involves exposing the skin to artificial ultraviolet light. It is prescribed by a doctor and can take place in the doctor’s office or a clinic. Sometimes, phototherapy is used in combination with oral (by mouth) or topical medicines.
- SYSTEMICS Available in the form of an oral or injected medication, systemic medications work from inside the body, rather than outside, and are prescribed by a doctor. One type of systemic is a biologic, which is used to treat moderate to severe plaque psoriasis. Biologics are taken by injection or infusion
COST OF PSORIASIS
Total direct and indirect health care costs of psoriasis for patients are calculated at $11.25 billion annually, with work loss accounting for 40 percent of the cost burden.Approximately 60 percent of psoriasis patients missed an average of 26 days of work a year due to their illness.
Thanks to the generous donations of many of individuals and companies, in Fiscal Year 2010-2011, the National Psoriasis Foundation:
- Stepped up efforts to find a cure for psoriatic disease by investing nearly $1.8 million in research;
- Began distribution to researchers of DNA samples from the National Psoriasis Victor Henschel BioBank;
- Spearheaded introduction of the Psoriasis and Psoriatic Arthritis Research, Cure, and Care Act of 2011 (PPARCCA) in Congress;
- Helped approximately 70,000 people through our health education programs and services;
- Expanded our reach and generated local support by forming community divisions across the U.S.;
During the fiscal year, we deepened our commitment to fighting psoriatic arthritis, which affects up to 30 percent of people with psoriasis. Among our efforts:
- We formed the Joint Smart Coalition with the Arthritis Foundation to provide an educational resource for people with psoriatic arthritis and other related inflammatory conditions;
- We funded research projects that focused solely on psoriatic arthritis, awarding grants totaling $400,000;
ABOUT PSORIASIS CHARITIES
- Offer good quality, reliable and independent information and advice to all who contact the charity.
- Raise awareness of the condition and work with other key health officials and health professionals on strategic issues.
- Fund and promote research into the causes, treatments and care of people with psoriasis.
- This is base on https://www.facebook.com/National.Psoriasis.Foundation
- The average subscribers are Man and Woman from age 25-44 years old.
- Facebook page has about 19,223 Likes witch is the amount of followers in their page.
Follower’s use this method of communication to give advice to other people diagnose with psoriasis. As well as people sharing their personal experiences. Followers also give recommendation of certain medication, they advice on weather and care. I notice parents trying to reach family groups in their area with the same condition as their child.
Is the largest online community of people impacted by psoriasis or psoriatic arthritis. Sponsored by the National Psoriasis Foundation, Talk Psoriasis is an open and encouraging environment where people affected by psoriasis or psoriatic arthritis can connect, exchange information, and meet friends.
The National Psoriasis Foundation is the world’s largest organization serving people with psoriasis and psoriatic arthritis. In addition to assisting nearly 2 million people annually through educational programs and services, the Psoriasis Foundation is the largest charitable funder of psoriatic disease research and psoriasis and psoriatic arthritis patient advocacy worldwide.
The Talk Psoriasis Support Community connects people affected by psoriasis and psoriatic arthritis for support and inspiration. This community is sponsored by the National Psoriasis Foundation, an Inspire trusted partner.
To connect with others affected by psoriasis and psoriatic arthritis:
WHAT IS IMPORTANT FOR THE SUBSCRIBER
- To relate with other individuals who are experiencing the same or similar situation.
- Recommendation of Physician.
- Recommendation of Medication.
- Family Groups.
- Share their experience.
- Give and receive advice.
OTHER CHAT RINGS
- National Psoriasis Foundation
- Got Psoriasis? Don’t Hide.
- Psoriasis SPEAKS
- There is no cure for psoriasis
- Frustration on Pain.
- Money spend in medicine with no result of getting better.
- Medication Side effects.
- Doubt on research to find a cure.
- Many young kids suffering this condition and parents are having a hard time finding something that works.
- According to current studies, as many as 7.5 million Americans—approximately 2.2 percent of the population–have psoriasis.
- Studies show that between 10 and 30 percent of people with psoriasis also develop psoriatic arthritis.
- About 1 out of 3 people with psoriasis report having a relative with the disease.
- Psoriasis often appears between the ages of 15 and 35, but it can develop at any age.
- More than 150,000 new cases are reported each year.
- Psoriasis prevalence in African Americans is 1.3 percent compared to 2.5 percent of Caucasians
- About one out of three people with psoriasis report having a relative with psoriasis.
GENETIC ASPECTS OF PSORIASIS
If one parent has psoriasis, a child has about a 10 percent chance of having psoriasis. If both parents have psoriasis, a child has approximately a 50 percent chance of developing the disease.
OTHER ORGANIZATIONS / BLOGS
- Papaa (created by David and Julie Chandler in 1993)
- Blog http://diicastpstory.blogspot.com/
- Psome (for kids with Psoriasis)
- It works for me blog
The Psoriasis 360, It’s a handy tool to help track your psoriasis and also facilitate conversations with your healthcare professional.
I was not aware of psoriasis, and I can really feel for these individuals that suffer with this skin condition. Reading their comments makes me feel compel to help. I don’t understand as well as many people suffering from psoriasis, how is that with all this technology surroundings us we don’t have a cure for this condition.
I notice parents being or feeling lost, not knowing what to do or were to star.